Monday, May 14, 2012

March of Dimes TOP TEAM!

We walked again in the March for Babies honoring Tessa. It was pretty emotional as expected. And being the 2012 Pinellas County Ambassador Family made this year so much more special.

We told Tessa's story again like we have so many times....it never gets easier.

{turn music off at bottom of page before playing!}

Here are some pics from the day....






Guess what!!??? We were the TOP fundraising team for Pinellas County!
THANK YOU ALL for your support of Fight Club!!!

You can still support us, click HERE to donate to our March of Dimes team!

Sunday, May 6, 2012

She hit the nail on the head

As a parent of a special needs child I often have feelings that I wonder are "normal". I wonder if I am alone in these feelings. This week I read two articles by Maria Lin that assured me I am not alone.

I found myself first reading "9 Ways You Can Help a Special Need Parent" while I was putting the girls to sleep. I cried. a lot.

 (via Huffington Post)

It was like she was inside my head and my thoughts were written on paper...something I don't ever communicate to anyone but Tony. It felt good to see I was not alone.

I went on to read her article from a few months ago "7 Things You Don't Know About a Special Needs Parent" and once again Maria was writing my feelings and thoughts.

(via Huffinton Post)

PLEASE take the time to read both of these articles....it will only take 10 mins TOPS. And could really make a difference in your life or the life of someone you know.

THANK YOU MARIA!

On a lighter note here are some pics from our weekend :)









Monday, April 23, 2012

I'm so embarassed

I started this blog as a way to keep family and friends up to date with our family, mostly Tessa {hence the name ;)}. You all supported us and prayed for her when we needed you most. I haven't forgotten that....

But life happened. CRAZY. It's amazing how fast time flys.

I can't believe Tessa will be 4 in four months. I can't believe that 4 years ago I was on and off bed rest awaiting the birth of a baby we prayed so hard for. I can't believe that God blessed us again and gave us Tristin. We are so blessed!

Tessa has started Preschool. She goes to public school...she's in a blended classroom. That means there are kids with special needs and "normal" kids. {Are ANY three year olds normal?? KIDDING!}

We struggled with this decision. BAD. I finally called the school 2 weeks before class was to begin and said she would not be joining them this year. A few hours later I had a voicemail from Tessa's would be teacher. I called her back. She started out by saying she had never in all her 8 years of teaching called a parent when they decided not to send their kid to school. She said something just told her she needed to call me. Um....that something was the sign I was praying for! I knew right then that Tessa was meant to go to school.

She has progressed more then I could have ever imagined! I kept her in a bubble WAY too long. Being with kids {her age} was seriously the BEST thing we could have done for her. Now don't get me wrong, for 6 months, 4 days a week, she cried screamed when I dropped her off. The first day was hard but then I thought about it. She will have soooo much more fun there. She does....more then I could have imagined.

Her teacher is always telling me how smart she is...like REALLY smart. She gets that from her daddy though I think it has a lot to do with the fact we all read to her while she was in the NICU. :) Her memory is wicked! She can recall things you never thought she heard let alone would remember. It's actually scary at times ;)

Tristin is my little sassy girl. She is giving my a run for my money. She is on the move now and NEVER wants to be still. She can give you a CHEESE like nobodies business {total ham!} and LOVES her big sister. Though they seem to wrestle more then play....will that change!? Please say yes!She really is a great little chunk {we call her chunk despite me asking everyone to NOT call her that....I just don't want it to stick ;)}and is taking after her sister with the smarts. I love to just sit back and watch her....she is going to be a handful for probably the next 19 years! Lord help me!

Well enough of my bragging. Here are a few recent pics.


The girls LOVE to be outside and with Daddy there they are in heaven!





Tessa is standing so much better! Still not 100% on her own but here she doesn't have her orthotic braces on and is only getting a little support from the ottoman!!




Okay this pic KILLS me! Her school does Fall & Spring pics. This is Spring. I LOVE it because she is not longer giving the "duh...I don't feel like smiling" look {think mouth open blank stare catching flies} and is saying CHEEEESE though she looks more like a rabid wildcat {her school's mascot is a wildcat!} ;)



Couldn't you just EAT HER! I mean come on...she's one sweet little chunk!
{BTW Tessa is obsessed with Spiderman...been for months. Though she has never watched the cartoon or anything....except she did just watch the real one {with Toby McGuire} but wasn't too in to it}


When you say "Tristin say cheeeese" this is what you get. A bold old plate of CHEEEESE!


Easter Sunday fun with bubbles


Easter Sunday fun with boogers ;)


No we did not adopt a son :) though I'd take him in a heartbeat!
I was an only child for 24 years then mom and dad surprised me with a gift....a sibling!
{he's a preemie too! born at 32 weeks!}

Wednesday, June 1, 2011

Shame on me....

Shame on me for not sharing photos of my girls with you!!

We've been sooooo busy with our daily chamber appointments on top of our other appointments that I've totally neglected this blog....and my house. You can tell by this update that my house is last on my list of priorities ;)

Before I share the latest pics I thought I'd share something I've decided to do for ME! Some days I feel like ME is missing and I've decided to bring ME back! I signed up to be a Vault Denim Consultant. Ever heard of Vault Denim?? It's pretty new. It's like Tupperware but instead of me bringing stuff for you to store your left-overs in I bring denim....designer denim!! Designers you buy at Nordstrom's or Saks at up to 50% off retail!! Shorts, jeans, skirts, cropped jeans....it's awesome!!! And the BEST part is that Vault Denim provides the inventory for you so you don't have to buy your display products like MOST home party companies!!






HERE is a link to my website and HERE is the link to my facebook page if you are curious!!! Feel free to send a message with any questions!! I'm building a team all over the country!!!

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Okay now on to my amazingly beautiful girls....










Tristin is 5 months old.....I can't believe it!! And I'm planning Tessa's third birthday!!! Where has the time gone??






Tuesday, April 19, 2011

The Hyperbaric Chamber.....our home away from home

I am always reminded how lucky we are to live where we do. We are 10 minutes (if that) from the Gulf of Mexico....less than 2 hours from Disney World....we have a MLB an NFL and a NHL team with venues just minutes from our house. Why would you want to live anywhere else???

Recently I discovered another gem we are lucky to have.....Chamber of Hope.

Chamber of Hope provides FREE (yes FREE!!) Hyperbaric Oxygen Therapy to children that have Cerebral Palsy, Autism, Shaken Baby Syndrome and other special needs. Besides the fact that they DO NOT CHARGE A PENNY, this is run out of their home! Yes.....from 9-5 Monday thru Friday they open their HOME to people like Tessa and I.

Sessions are an hour long for 3 months, five days a week. This has added 5 more appointments to our schedule for a total of 9 every week! Needless to say we stay pretty busy!

Pardon the pics...they were taken from my phone.....but I wanted to share with you....


They've given up their living room to set-up these 4 chambers




Our view from inside. I will admit the first time I climbed in I felt like I was getting in a coffin. I did my best to not let Tessa know I was about to FREAK OUT because the look on her face pretty much told me she was just as freaked as I was!

(Thank goodness for the DVD player!)




This is how she naps these days :(

(I can't look at that picture for too long.....her head position is creepy!)

Wonder where the heck Tristin is through out all this??

Another thing we are lucky to have is an AMAZING family! Both of our parents live very close and are always willing to help out. MeMe (my mom) watches Tristin 3 days a week during our HBOT, Nana Karan watches her on Wednesdays and Tony takes her once a week to a few offices during our session.

Some may wonder why I am putting us through this crazy schedule but what kind of mother would I be if I didn't give Tessa EVERY possible "treatment" available to her? Even if there is a slight improvement it is all worth it!

Speaking of improvement we've noticed a BIG difference in her speech. Our speech therapist is amazed with the progress after just one week. Tessa is still speaking Tesslish (that's her language) but it's more understandable and she is trying to talk way more.

Last week was also Tessa's first dental appointment.  I was sure they would have to give her gas (laughing gas) since brushing her teeth ends in a wrestling match between her and I but she shocked the heck out of me. Yes, she was still a wiggle worm but she let the hygienist clean them and the dentist look around. NO cavities!!

I'm so jealous and am thinking of asking them if I can be a patient too....

YES this cool train is in the waiting room!

And she's watching TV...a TV that is mounted in the CEILING!!! How could she NOT love this place!?


I couldn't post without including something about CHUNKY Tristin. She is amazing! The BEST baby ever. She's so happy and laid back. Tessa keeps us on our toes so I am pretty sure GOD knew what he was doing when he made Tristin so good!


Easter Bunny 2011



"Dude, you can have her! Just give me a piece of chocolate and we'll call it even!"





Thursday, February 24, 2011

I just wish he didn't trust me so much....



So I have this girl....and she's 2.5 years old. She's pretty sweet (for like 2 hours out of the day). Wanna know what she's doing the other 22 hours......



Welcome to Meltdown City!
(clothing is optional)

This pretty much makes me want to go sit outside...by myself....in the dark.....while it's raining....and get eaten by mosquitoes :(

For the record those pics are from a few weeks ago when Tessa had a cold. Note to self: next time I get a cold I'm grabbing a popsicle, my purple sippy cup, removing my shirt and taking a trip to Meltdown City!


I know this will pass.....even though most are telling me it gets worse at 3.

GOD doesn't give us more than we can handle. I just wish he didn't trust ME so much.







Now there's my sweet girl! <3


Luckily Tristin was born with this rare gene that allows her to block all the nonsense out. SERIOUSLY.

She sleeps right thru these DAILY trips to Meltdown City. THANK. YOU. LORD.
(not sure I could handle TWO residents from that town!)





Tessa is getting her adenoids out on Monday. I'm still trying to figure out why the heck we even have adenoids?? Or Tonsils. Or Gallbladder??

I posted another pretty RAD review and giveaway! If you are in the market (or know someone who is) for a double stroller you MUST read it! The Zooper Tango is superb!
HERE is the review and giveaway!

Oh....and I've picked an "art" theme for Tessa's birthday this year....AND guess what?? Paper and Cake is givingaway a set....click HERE to enter! Or not....better chances for me to win!



Monday, February 21, 2011

over on my other blog...


As you may know I have another blog, Steals, Deals and Heels, where I post about great STEALS and DEALS I come across. I also post some pretty FABULOUS giveaways!. This year I decided to start doing product reviews. 

If you are interested in seeing my reviews, taking part in the giveaways or hearing about the latest sales and clearance items I come across hope on over and start following!



My current review is of the WubbaNub.....check it out HERE and make sure to enter to win your very own WubbaNub!!